Archive for the ‘Family Matters’ Category

Dangers in health care’s hidden costs, coverage gaps


2012
09.03

Last week I wrote about my experience with state-mandated health insurance – how it probably saved my life and without question saved my family from bankruptcy. Making health insurance affordable solves one problem faced by many Americans today – it keeps them from suffering catastrophic financial ruin in the event of a major medical crisis. But it doesn’t do a thing to actually reduce the cost of that care, which has spiraled out of control over the past few decades.

A recent article in The Boston Globe certainly drives this home.

“Of more than 3,000 Massachusetts adults surveyed in fall 2010 — the most recent survey data available — 17.5 percent reported having problems paying medical bills in the previous year. Twenty percent said they were carrying medical debt and paying it over time. Those figures changed slightly from 2006, but researchers said the difference was not statistically significant.”

Contributing factors include medical insurance plans with high deductibles and lapses in coverage.

Certainly having insurance coverage helps reduce the financial strain on families who undergo unexpected and catastrophic medical expenses, but if your budget is already stretched to the limit just trying to meet your family’s basic needs, it doesn’t take many high deductibles or hidden expenses to push you over the edge.

There’s a huge problem with a lack of transparency when it comes to the cost of coverage. Patients can run up huge bills without realizing it, even if they’re insured.

A 2010 survey from Blue Cross Blue Shield cited in the article cited a significant drop in the number of patients with unpaid bills totalling between $500 and $1,000. “But there was no statistically significant change in people reporting smaller or larger amounts.” It’s trivial to run up a much larger bill than that for seemingly minor procedures, or for the associated cost of emergent medical care like ambulance transportation.

But a bigger problem – and one that Massachusetts has yet to solve in any substantive way – is what happens to a lot of lower-income families like ours:

“Low-income people commonly lose insurance for brief periods when they move from one state assistance program to another. Others can get lost in a maze of eligibility requirements.

“The state is developing a website meant to streamline the enrollment process. Meanwhile, bills can add up during those gaps in coverage.”

There’s a huge problem with a lack of transparency when it comes to the cost of coverage. Patients can run up huge bills without realizing it, even if they’re insured. That’s precisely what happened to us last December when my daughter was hospitalized. She had insurance, but the insurance wasn’t good enough to cover non-emergency ambulance transportation from one hospital to another – required because the hospital she was brought to didn’t have the inpatient services needed to treat her effectively. We ended up getting a bill for the ambulance that drove her, to the tune of almost $2,700.

We’re still fighting that one. But it’s not like we were given the choice between taking her to the other hospital ourselves or footing the bill for the ambulance. It wasn’t until months after the incident that the issue of the bill even came up.

The bottom line is that insurance improvements in Massachusetts and the Affordable Care Act both help to make sure that catastrophic illness won’t be a death sentence for the financial stability of families living at the edge or below the poverty line. But both services stop dramatically short of actually correcting many of the cost problems that make health care in the United States such a big problem for so many people. For that, we’re going to need much more dramatic changes to the way that hospitals, pharma companies and others do business.

Affordable health care saved my life


2012
09.03

Greg Knauss’ recent blog posting “Bugged” describes his experience in the hospital when his son’s bug bite turned into something much worse. As it turns out, without insurance, he would have been expected to fork over almost $24,000 in medical expenses. Knauss’ comments have encouraged me to write more about my recent hospitalization, because I was in a different place all together: If it weren’t for government-mandated affordable care, I would be dead or bankrupt.

Knauss makes the point that the Affordable Care Act – “ObamaCare” as it’s known in political vernacular – will provide a safety net to many Americans who don’t have health insurance. If you’re insured, or if you can afford a lengthy hospital stay, it’s easy to poo-poo this as yet another government “entitlement.” But until you’re staring this situation in the face, you cannot possibly understand how terrifying the prospect of going without insurance really is.

As some of you know, I spent the last part of June and the first week of July in the hospital because of a foot infection. I had stepped on a sharp piece of plastic that punctured the bottom of my foot. I went to the doctor shortly after noticing swelling in my foot, but an infection had already set in. Bonnie brought me to the ER at the local hospital two days later; I was admitted and surgery was performed immediately. I ended up spending a week and a half in the hospital recovering from that.

Unlike Knauss, I didn’t have COBRA coverage. Anymore.

For the uninitiated, COBRA enables workers in the United States who lose health benefits to continue them temporarily. It isn’t an “entitlement” – you pay the entire premium for the insurance, up to 102 percent, actually.

For a family like us, COBRA was absolutely vital: my daughter’s been hospitalized several times, some of us take expensive prescription medications, and I suffer from chronic health problems that require drugs and regular monitoring from doctors. I’m an insurance risk, just the sort of risk that companies love to reject, similar to how Greg describes himself. But going without insurance would quite literally be a death sentence for me, and possibly for other family members too.

I paid out of pocket for COBRA every month I could after I lost my job. I was happy to. It was the continuation of services that kept us healthy and alive during my ten-year tenure at my previous employer.

It was only when the eligibility period ran out that I was finally forced to go without.

Fortunately, I live in a place where there is a safety net. I live in Massachusetts. In 2006, our governor signed a health care insurance revision bill into law. The law mandates that Mass residents can obtain a minimum level of healthcare insurance coverage, and makes sure that you can get free health care insurance if you earn less than 150 percent of the federal poverty level.

That governor was Mitt Romney, and the law I’m referring to is colloquially known as “RomneyCare.” It’s also been widely described as inspiring large parts of the Affordable Care Act.

The bottom line is that the vast majority of the residents of Massachusetts – an estimated 98 percent – have some sort of health care coverage, even if it’s the bare minimum needed to cover catastrophic events like hospitalization. Thanks to RomneyCare.

It was this insurance that I was able to get. I’m sorry to admit that those Federal poverty guidelines pertain to me, so I got the free coverage. Quite frankly, the economy and the publishing industry have not been kind to me since losing my last full-time job.

Without RomneyCare, I probably would have put off getting to the doctor or the hospital until I’d been much worse. And I’d be footing the bill for that ten day hospital stay. For the surgery, and the anesthesia. For each and every pill I took, every bandage I used, every linen that needed to be washed. For the bags of antibiotic administered intravenously. For the nurses, doctors and technicians who treated me every day. For the months of followup treatment I’ve required – a month and a half of IV antibiotics, more pills, daily visits to a wound care treatment facility for hyperbaric oxygen treatment, a visiting nurse who comes once a week to check on my progress, the specialized bandages and medicines I must use to keep infections at bay.

Two months later, it’s still not over. All this, because a piece of twisted, sharp black plastic less than two centimeters long got stuck in my foot.

I have little doubt that without RomneyCare I’d be declaring bankruptcy at this point, because I have barely the money to keep the lights on right now, let alone pay for a ten-day hospital stay to treat septicemia. Let alone the months of specialized post-surgical treatment I’ve needed to recuperate.

It was a totally unexpected event that I couldn’t have reasonably planned for. And even if I had, it would have required me to be able to afford to pay the expensive insurance premiums which are totally beyond my reach right now. I take no pride in admitting that. And to reiterate: I paid for private insurance as long as I could. I didn’t want to burden the system if I didn’t have to.

The system isn’t perfect. Premiums and service costs continue to rise into the stratosphere. There’s still a serious need for health care reform in Massachusetts and throughout the United States, and the Affordable Care Act doesn’t change that.

Knauss writes:

We can make this work. We have to make this work. A bug bite cannot be the thing that draws the line between a middle-class life and poverty, between opportunity and the stagnant dead-end of could-have-been. Our friends, our neighbors, our children, the future of this country as a cohesive society — as an endeavor where we see each other as more than opponents, as more than comptetitors [sic] — depends on it.

There are millions of Americans who can’t afford routine medical treatment, much less catastrophic care. Many seniors and others on fixed incomes have to decide from month to month whether they pay their utility bills or get the medication that keeps them healthy. Expecting friends, relatives, churches and charities to help them all is ridiculous. Expecting them to barter chickens for doctor visits is insultingly stupid.

And current “entitlement programs” – many of which inadequately cover the needs of these people to begin with – are being eviscerated by legislators who use the guise of reducing government spending to conceal their craven pandering to corporate interests and lobbyists.

I find it inconceivable that we’re still having a national discussion about health care as a privilege only for the wealthy or those lucky enough to work for an employer who offers affordable insurance. We need to recognize it as a fundamental human right if we’re to ever evolve as a compassionate society that actually wants to uplift its population to prosperity. We’ve heard a tremendous amount of lip service from the political right in this country about that, but their actions to dismantle the ACA and Medicare are completely counter to effort.

RomneyCare saved my life. And it kept our family out of bankruptcy.

The system worked.

Bonnie is my awesome (and hot) footcare nurse


2012
08.07

When it comes to taking care of my foot, Bonnie gets the shit end of the stick. She’s been my nursemaid since I came home from the hospital, and as soon as the Visiting Nurses Association knew she lived with me, they made sure she understood how to change my foot dressing and medicate the wound site. That reduced the frequency of their visits drop from daily to every other day, and for the last several weeks, now that they’re happy with her technique and my progress, weekly.

Every day sheBonniechanges the bandage on my foot, and she’s gotten quite good at it – good enough that two doctors complimented her on her technique last week, along with the VNA nurse who came out last Friday to change my PICC line dressing. Bonnie’s meticulous about it. She knows exactly what to do, sets all the supplies up she needs ahead of time, pops on a couple of latex gloves and gets to work. The whole process takes about ten minutes from start to finish – unraveling the old bandages, checking the wound, dabbing it with a powerful antibiotic wash, and then rebandaging both the top and the bottom of the foot while wrapping the entire foot in gauze to keep the bandages in place. It’s really a feat of dexterity.

One side effect of getting a really bad case of swelling in the foot is that the outer skin layers have been peeling off like I have a bad sunburn. At least a few times now, doctors and nurses have peeled away dead skin from my toes as if they were peeling grapes. An unsettling experience, to say the least.

After consultation with nurses and doctors, Bonnie’s moisturizing the foot (at least in the areas away from the wound site). While some people make foot moisturizing part of their regular hygiene, it’s something I never did before the hospitalization. In the hopes that it’ll help quicken the healing process and exfoliate the dead skin that needs to come off anyway, she started doing it about a week ago.

And for the past week or so, the towels Bonnie’s used to put under my feet as she changes the dressing have come away with what looks like snow on them — all dead skin just coming off my foot in flakes.

I guess this is the “in sickness” part of the vows we repeated when we got married. It’s a good thing she loves me, because it’s disgusting and I don’t even want to deal with it, but she handles it like a champ and does a wonderful job and I love her all the more for it.

Back at home


2012
07.10

In all the commotion I haven’t had the presence of mind to update Tikkabik since I was discharged from the hospital this past Friday. I’m home now, resting comfortably.

The doctor has prescribed antibiotics that are being administered through an IV, which I have to push myself three times a day – 5AM, 1PM and 9PM. It’s a routine, and while I’m not that coherent first thing in the morning, I’ve gotten pretty accustomed to it. Usually a nurse from the VNA shows up sometime mid-morning to change the dressing on the foot.

That’s pretty much my excitement for now. I’m “homebound,” according to the hospital and the nurses, which means I’m not supposed to go out unless I have a doctor’s appointment or some other necessity. And the foot is supposed to only be “partially weight-bearing,” so I can’t walk on it for any extended period.

It’s a little frustrating to be so limited, but I understand the healing takes time – more so, in my case, because of the diabetes and some of its complications, particularly how it affects vascular health.

It’s probably just as well, because quite frankly, I’m wiped out by about 7 or 8 PM every night. I can barely keep my eyes open, and often find myself dozing.

Bonnie’s been great throughout all this. She’s had to coordinate the kids’ many trips to doctors, orthodontist, therapists, etc. by herself, as well as picking up groceries, medical supplies for me and everything else. It’s a lot of work for one person to deal with, especially since we broke those duties up as best we could before.

Back from SF


2012
06.17

We just got back from San Francisco last night, where we’d spent the previous week. I was there for WWDC, to represent The Loop at our first party ever and meet with some developers.

Now that the kids are old enough to mostly take care of themselves (with some occasional help from friends and family), Bonnie was able to travel with me. That’s a first. In all the years I’ve gone to trade shows, Bonnie has had to stay home to take care of the kids.

We had some time to do fun things – explore Japantown and Chinatown, go to Fisherman’s Wharf, spend some time at museums, and have some dinners and drinks with friends. It was wonderful to have Bonnie with me this time, and I’m hoping we can make a regular thing of it.

Mostly I’m proud of the kids for being self-sufficient and responsible enough to take care of themselves without us having to worry and wonder what they were up to.

Musical memory lane with the 15 year old


2012
04.18

As her parents did and their parents did, Emmeline is exposed to music we like and is picking up bits and pieces of our music collection that suit her tastes. The latest two additions to her music library culled from our glory days are The The and, incongruously, Scritti Politti.

The theThe The (these days, an SEO nightmare of a name) was the work of Matt Johnson. His first three albums, Soul Mining, Mind Bomb and Infected stand up as some of the best politically-minded pop music of the 80s. Johnson’s songs painted a bleak look at the landscape of 80′s geopolitics, from the rise of the Christian right to the troubles of working class Britain to conflict in the middle east.

It’s depressing, more than two decades later, to see how little things have changed. Though it doesn’t diminish how much ass Matt Johnson’s music kicked.

As far as Scritti Politti goes, Emmeline says she likes Green Gartside’s voice. That’s as good a reason as any.

Anime Boston 2012 is over


2012
04.09

Anime Boston 2012 is receding in our rear view mirrors, after three days at the Hynes Auditorium in Boston, where it attracted more than 20,000 people over three days. It was fun, as always, though this year it offered some distinct challenges Bonnie and I haven’t had to deal with in a few years.

Because of finances, we elected to do Anime Boston as day trips rather than getting a room at the Sheraton or one of the other Prudential Center-area hotels. That meant waking up early – 5:30 or 6 AM each morning – getting ready and driving in from the Cape, then getting home after 10 PM each night.

This worked ok for Friday, the first day of the show. Friends of ours who we had dinner with on Friday caught wind of what we were doing and thought it was ridiculous, so they offered to put us up. Their home is about half as far away from Boston as ours, and a 45-minute ride into Boston was a much better option than a 90-minute ride. So on Saturday night we stayed with them, and they even made us a nice hot breakfast on Sunday morning – despite getting ready for an onslaught of relatives for Easter brunch.

The event itself was fun. There was a lot to celebrate – Anime Boston is ten years old this year, and based on attendance figures, hasn’t suffered at all despite being scheduled for the same weekend as another huge nerd culture event, PAX East – the consumer video game show, which happened across town at the Boston Convention and Expo Center.

We’ve been to that each time it’s been held in Boston but this year we didn’t go because of the scheduling. Our first priority is to Anime Boston, which we’ve been going to every year since it started. And, quite frankly, we find the value proposition of AB better than PAX – there’s more to do, eat, and enjoy for less money around AB than there is around PAX.

Each year, Anime Boston changes. Anime is a pop culture phenomenon, after all, and pop culture rapidly changes. It also feels like the audience for the show is getting younger, but the truth is, Bonnie and I are getting older. We went to our first Anime Boston show when we were 32, and now we’re 42. For years, it was just *our* thing, to enjoy without the kids, but now we bring the kids with us. All told, we hope to continue doing it for years to come.

iPad drawing


2012
03.28

Emmeline finally changed her mind and started using an iPad recently. She was the lone holdout in the family – the boys had adopted the technology some time ago, and Bonnie uses one as well. For Emmeline it was less of an issue – her friends and she communicate through services that don’t work on the iPad (including Web sites that still depend on Adobe Flash technology) so she had opted for a netbook instead. It had done her very well for the past year.

Anyway, Emmeline’s use of the iPad is dramatically different than her brothers. While Robert and James play lots of games, Emmeline’s use is a bit more on the creative side. She’s downloaded art apps and has taken to creating pictures. After using a mouse and trying out a stylus, she finds the finger gestures and movements of the iPad to be a natural way to interact with the device, and she’s quite enjoying herself.

Purple Paisley Platform Pumps


2012
03.26

From Target.

 (Not for me, for Bonnie. And I’m disappointed that I even need to point that out.)

On FIP


2012
03.25

Six months ago we adopted two cats – Angel and Tonka. Angel is still with us and doing very well. Tonka passed away before Christmas in December. This was Tonka.

Tonka

The shelter we got them from asked us to adopt them both together, as they had come from the same home. What we didn’t realize, and what they didn’t know, is that Tonka had developed FIP.

FIP, or Feline Infectious Peritonitis, is an invariably fatal disease, and vets don’t quite understand the mechanism that sets it off, though they know that it can be acquired when many cats live in close proximity to each other, like in a cattery or in a shelter. Tonka and Angel spent more than six months in a shelter before we adopted them.

A cat can test positive for FIP antibodies in its blood but will never develop symptoms. We’re not sure why Tonka got sick, and we never will be. All we know is that one day he was looking a bit more haggard than usual, and we brought him to the vet, and discovered that he’d lost weight. As more time went on, he lost more weight, and began to develop other symptoms consistent with FIP – jaundice, lethargy, inability to walk without wobbling.

Tonka was a really good boy. He never complained, unless we brought him to the vet, and he was put to sleep with no fuss or drama. Having lost Max only a few months before we got Tonka and Angel, our hearts were broken, but we’re satisfied we did everything we could.

Angel has turned into a different cat since Tonka’s passing. While she’s still skittish and nervous, just like she’s always been, she’s also become much more dominant – anxious to be the center of attention, especially at meal times.

Angel

As per our vet’s suggestion, we haven’t tested Angel for the FIP antibody – chances are since Tonka had it, she has it too. Because knowing wouldn’t tell us anything about whether or not she’ll develop the condition. We choose to live in hope and happy ignorance.